VALIDATION DATA

MEASUREMENT PROPERTIES
Limitations <5 European languages (English)
Observations
1. RELIABILITY
A. Internal Consistency Tested
Cronbach's (Describe)

Cronbach’s α for the 8 domains:

0.88-0.96

B. Reliability intraobserver or test-retest Tested
Continuous scores: intraclass
correlation coefficient (ICC)
Dichotomus: Cohen kappa (Describe)

ICC over 4 weeks for each domain ranged from 0.72 to 0.93

C. Reliability interobserver or Measurement error Not Tested
Standard error of measurement (SEM),
smallest detectable change (SDC) or
Limits of agreement (LoA) (Describe)
2. VALIDITY
A. Content validity: face validity Tested
Expert opinion (relevance and
comprehensiveness) (Describe)

The content was derived from semi structured interviews with patients and psychometric testing with patient’s feedback. A panel of discussant met to consider each item in terms of association with SLE activity, generality and expression of a single idea.

B. Construct Validity:
Structural validity
Not Tested
Hypotheses-testing Tested
Cross-cultural validity Tested
Brief Description

It was evaluated if the instrument can differentiate between patients with different degrees of disease severity according to BILAG (disease activity in 4 groups) and the SDI (damage yes/no)
Significant effects were observed by groups for all domain except fatigue

C. Criterion validity Tested
Comparison with a 'gold standard' Continuous scores:
correlations, ROC curves Dichotomus:
Sensitivity & Specificity (Describe)

Comparing with an established questionnaire to measure the same construct: SF-36

Spearman correlation: 0.71-0.79 for the 4 comparable domains