| Name of the Instrument/Tool | Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY) |
| First Description |
Moorthy LN, Peterson MG, Baratelli M, Harrison MJ, Onel KB, Chalom EC, et al. Multicenter validation of a new quality of life measure in pediatric lupus. Arthritis Care & Research. 2007;57(7):1165-73. |
| Year | 2007 |
| Domains | |
| Concept of constructs | Health related quality of life |
| Population/Disease | Disease specific |
| Originally developed for | --- |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | English |
| Available in Language | Arabic, Chinese, Czech, Danish, Dutch, English, French, German, Greek, Hungarian, Italian, Portuguese, Romanian, Slovenian, Spanish, Turkish |
| REFERENCE IDENTIFICATION | |
| Author/s | Moorthy LN, Peterson MG, Baratelli M, Harrison MJ, Onel KB, Chalom EC, et al. |
| Title | Multicenter validation of a new quality of life measure in pediatric lupus. |
| Journal | Arthritis Rheum. |
| Year | 2007 |
| Vol | 57 |
| Num | 7 |
| Pages | 1165-73 |
| Country | US |
| Language | English |
| Other references of interest | |
| Link | https://www.ncbi.nlm.nih.gov/pubmed/19433463 |
| Brief Description |
Relationship between health-related quality of life and SLE activity and damage in children over time. |
| Link | https://www.ncbi.nlm.nih.gov/pubmed/20064912 |
| Brief Description |
Impact of lupus on school attendance and performance. |
| Instrument/Tool Translations References | |
| Link | https://www.ncbi.nlm.nih.gov/pubmed/23093477 |
| Brief Description |
An update on cross-cultural adaptation of US English SMILEY. |
| Link | https://www.ncbi.nlm.nih.gov/pubmed/19934176 |
| Brief Description |
Preliminary cross-cultural adaptation of a new pediatric health-related quality of life scale in children with systemic lupus erythematosus: an international effort. |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | L. Nandini Moorthy, |
| lnmoorthy@mac.com. | |
| Address | Division of Pediatric Rheumatology, University of Medicine and Dentistry of New Jersey |
| Website | --- |
| Available | --- |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Questionnaire |
| Brief Description |
SLE-specific pediatric HRQOL scale with parallel child and parent reports with a 5-faces scale for responses. It is divided into 4 domains: effect on self (5 items), limitations (8 items), social (4items), and burden of SLE (7 items). Items related to school are spread across all domains. |
| Number of Items | 26 |
| Range | 1-100 |
| Responses options/scale |
Yes 5-faces scale with different facial expressions |
| Developed for | Both |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
If 12 questions are not answered, the SMILEY cannot be scored. The first 2 items on current SLE status and QOL assessment are not included in the domains or in calculating the final score. |
| Score Interpretation | Higher scores indicate better QOL |
| Cut-off points | --- |
| Cut-off points applied to | --- |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | --- |
| Completion time by the patient | <10 minutes minutes |
| Scoring time by the assessor | ≤ 10 minutes minutes |
| Training to score | Not necessary |
| Strengths | Easy to use, Useful in clinical practice & research |
| Limitations | --- |
| OTHER COMMENTS | |
| Other Comments | --- |