Detailled Information

Name of the Instrument/Tool Child Health Questionnaire (CHQ)
First Description

Landgraf JM, Maunsell E., Nixon-Speechley K.N.,Bullinger M., Campbell S., Abetz L., and Ware JE. Canadian-French, German and United Kingdom Versions of the Child Health Questionnaire (CHQ-PF50): Methodology and Preliminary Item Scaling Results. Quality of Life Research, 1998:7(5);433-445.

Year 1996
Domains
Concept of constructs Health related quality of life
Population/Disease Generic
Originally developed for Juvenile Idiopathic Arthritis (JIA)
Other rheumatic diseases
where can be applied (only if validated)
Juvenile Idiopathic Arthritis (JIA), Rheumatoid Arthritis (RA), Systemic Lupus Erythematosus (SLE)
Additional population with no rheumatic diseases Yes
Chronic conditions
Language: Originally published in English
Available in Language Arabic, Bulgarian, Chinese, Croatian, Czech, Danish, Dutch, English, Filipino, Finnish, French, Georgian, German, Greek, Hungarian, Italian, Korean, Lithuanian, Norwegian, Polish, Portuguese, Russian, Serbian, Slovak, Spanish, Swedish, Thai, Turkish
REFERENCE IDENTIFICATION
Author/s Landgraf JM, Abetz L, Ware JE
Title The CHQ: A User’s Manual
Journal 1st edn. Boston, MA: The Health Institute, New England Medical Center
Year 1996
Vol ---
Num ---
Pages ---
Country US
Language English
Other references of interest
Link http://www.ncbi.nlm.nih.gov/pubmed/9691723
Brief Description

First validation of the Canadian-French, German and UK translations/adaptions of the 50 item, parent-completed Child Health Questionnaire (CHQ-PF50).

Link http://www.ncbi.nlm.nih.gov/pubmed/17266064
Brief Description

evaluation of proxy-reported HRQOL and its determinants in 3,324 patients with juvenile idiopathic arthritis and 3,315 healthy children enrolled from 32 countries.

Link http://www.ncbi.nlm.nih.gov/pubmed/19487266
Brief Description

HRQOL in 98 children with childhood-onset SLE compared to that of normative cohorts and in relation to disease activity and damage

Instrument/Tool Translations References
Link http://www.ncbi.nlm.nih.gov/pubmed/11510308
Brief Description

Presentation of the cross-cultural adaptation and validation of  the CHQ in the 32 different member countries of the Paediatric Rheumatology International Trials Organization

Link https://www.healthactchq.com/translation/chq
Brief Description

There are currently almost 90 ISPOR standard translations for the CHQ family of measures. Please see the link above at the HealthActCHQ website for a current translation listing

DEVELOPER CONTACT INFORMATION
Correspondence to HealthActCHQ Licensing Department
E-Mail licensing@healthactchq.com
Address 800 Boylston St 16th Floor, Boston MA USA 02199
Website https://www.healthactchq.com/licensing.php
Available See below
Links ---
DESCRIPTION OF THE INSTRUMENT
Type Of Measure Questionnaire
Brief Description

The CHQ is a  family of measures that spans more than 30 years of rigorous development and research and includes child self-report (CF) and parent-administered (PF) versions for measuring HRQOL in children and adolescents aged 5-18 years. Normative US based data is available for all CHQ measures. It is considered a “gold standard” HRQOL measure. 

Number of Items Family of Measures include full-length and empirically derived short-form alternatives for the parent-reported versions (CHQ-PF50, CHQ-PF28; 50 and 28 items respectively) and the child self-report (CHQ-CF87, CHQ-CF45; 87 and 45 items respectively).
Range There are profile or concept specific scores for each measure that range from 0-100.
Responses options/scale Yes
each item consists of 4-6 response options in ordinal scales
Developed for Both, Clinical practice, Research
PRACTICAL APPLICATION
Method of administration Self-administered
Recommendations to score

CHQ Surveys, scoring algorithms, norms and related documents are proprietary and protected by international copyright. A HealthActCHQ scoring and interpretation manual is required and is provided to all end users for specific project use as part of a paid license.

Score Interpretation Each summary has a 0-100 range (100 best possible health state), with a mean of 50 and a SD of ±10.
Cut-off points Poor HRQOL for the PhS and PsS scores are defined as 1 SDs below the mean
Cut-off points applied to ---
Smallest detectable change if described ---
Smallest detectable change applied to ---
Completion time by the patient 5-15 minutes (CHQ-PF50) to 16-25 (CHQ-PF87 minutes
Scoring time by the assessor 0 minutes
Training to score Manual required
Strengths Useful in clinical practice & research, Widely used
Limitations Complex scoring, Copyrighted
OTHER COMMENTS
Other Comments

The PROM is not available because of Copyright