Detailled Information

Name of the Instrument/Tool Pediatric Rheumatology Quality of Life Scale (PRQL)
First Description

Filocamo G, Schiappapietra B, Bertamino M, Pistorio A, Ruperto N, Magni-Manzoni S, Lanni S, Saad-Magalhaes C, Galasso R, Lattanzi B, Muratore V, Tani D, Martini A, Ravelli A. A new short and simple health-related quality of life measurement for paediatric rheumatic diseases: initial validation in juvenile idiopathic arthritis. Rheumatology (Oxford), 2010;49(7):1272-80

Year 2010
Domains
Concept of constructs Health related quality of life
Population/Disease Disease specific
Originally developed for Juvenile Idiopathic Arthritis (JIA)
Other rheumatic diseases
where can be applied (only if validated)
---
Additional population with no rheumatic diseases No
Language: Originally published in English
Available in Language Italian, English
REFERENCE IDENTIFICATION
Author/s Filocamo G, Schiappapietra B, Bertamino M, Pistorio A, Ruperto N, Magni-Manzoni S, Lanni S, Saad-Magalhaes C, Galasso R, Lattanzi B, Muratore V, Tani D, Martini A, Ravelli A
Title A new short and simple health-related quality of life measurement for paediatric rheumatic diseases: initial validation in juvenile idiopathic arthritis.
Journal Rheumatology (Oxford).
Year 2010
Vol 49
Num 7
Pages 1272-80
Country Italy
Language English
Other references of interest
Link https://pubmed.ncbi.nlm.nih.gov/22588764/
Brief Description

Measures of health status and quality of life in juvenile rheumatoid arthritis: Pediatric Quality of Life Inventory (PedsQL) Rheumatology Module 3.0, Juvenile Arthritis Quality of Life Questionnaire (JAQQ), Paediatric Rheumatology Quality of Life Scale (PRQL), and Childhood Arthritis Health Profile (CAHP).

Link https://pubmed.ncbi.nlm.nih.gov/24206654/
Brief Description

The pediatric rheumatology quality of life scale: validation of the English version in a US cohort of juvenile idiopathic arthritis.

Instrument/Tool Translations References
No other References.
DEVELOPER CONTACT INFORMATION
Correspondence to Angelo Ravelli,
E-Mail angeloravelli@ospedale-gaslini.ge.it
Address Istituto Giannina Gaslini, Genova, Italy
Website ---
Available ---
Links

(available at Rheumatology Online).

DESCRIPTION OF THE INSTRUMENT
Type Of Measure Questionnaire
Brief Description

A short and simple HRQL questionnaire designed to measure the core dimensions of physical, mental and social health delineated by the World Health Organization. 

Number of Items 10
Range 0-30
Responses options/scale Yes
Both parent and child forms use a 4-point ordinal scale (0 = never to 3 = all the time) to measure the frequency of symptoms in the previous month for all items.
Developed for Both
PRACTICAL APPLICATION
Method of administration Self-administered
Recommendations to score

Items are grouped in two subdimensions, each composed by five items: PhH and PsH. Questions refer the respondent to the previous month. The responses on a four-point Likert response format, are ‘never’ (score = 0), ‘sometimes’ (score = 1), ‘most of the time’ (score = 2) and ‘all the time’ (score = 3). A ‘not assessable’ column was included in the parent version of the questionnaire to designate questions that cannot be answered because of developmental immaturity.

Score Interpretation higher scores indicating worse HRQL
Cut-off points ---
Cut-off points applied to ---
Smallest detectable change if described ---
Smallest detectable change applied to ---
Completion time by the patient <5 minutes
Scoring time by the assessor <5 minutes
Training to score Not necessary
Strengths Useful in clinical practice & research, Easy to use
Limitations ---
OTHER COMMENTS
Other Comments ---