| Name of the Instrument/Tool | JIA parent global assessment |
| First Description |
Singh G, Athreya BH, Fries JF, Goldsmith DP. Measurement of health status in children with juvenile rheumatoid arthritis. Arthritis Rheum. 1994 Dec;37(12):1761-9. doi: 10.1002/art.1780371209. PMID: 7986222. |
| Year | 1994 |
| Domains | |
| Concept of constructs | Health related quality of life |
| Population/Disease | Disease specific |
| Originally developed for | Juvenile Idiopathic Arthritis (JIA) |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | English |
| Available in Language | --- |
| REFERENCE IDENTIFICATION | |
| Author/s | Oen K, Toupin-April K, Feldman BM, Berard RA, Duffy CM, Tucker LB, Tian J, Rumsey DG, Guzman J; ReACCh-Out investigators. |
| Title | Validation of the parent global assessment as a health-related quality of life measure in juvenile idiopathic arthritis: results from ReACCh-Out. |
| Journal | Rheumatology (Oxford). |
| Year | 2023 |
| Vol | 23 |
| Num | 62 |
| Pages | SI152-SI162 |
| Country | Canada |
| Language | English |
| Other references of interest | |
| Link | https://pubmed.ncbi.nlm.nih.gov/28320056/ |
| Brief Description |
Health-Related Quality of Life in an Inception Cohort of Children With Juvenile Idiopathic Arthritis: A Longitudinal Analysis. |
| Link | https://pubmed.ncbi.nlm.nih.gov/33506861/ |
| Brief Description |
Causal pathways to health-related quality of life in children with juvenile idiopathic arthritis: results from the ReACCh-Out cohort. |
| Instrument/Tool Translations References | |
| No other References. | |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Develpoment: G Singh/ Validation: Jaime Guzman |
| jguzman@cw.bc.ca | |
| Address | Jaime Guzman, BC Children’s Hospital, 4500 Oak Street, Room K4-122 Vancouver, BC V6H 3N1, Canada |
| Website | --- |
| Available | --- |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Scale |
| Brief Description |
The JIA parent global assessment is a visual analogue scale (VAS) used to assess health-related quality of life (HRQoL) in children with juvenile idiopathic arthritis, formulated by ‘Considering all the ways that arthritis affects your child, rate how your child is doing by placing a mark on the line’- from 0 to 10. |
| Number of Items | 1 |
| Range | Anchored by the words 0 (very well) and 10 (very poor). |
| Responses options/scale |
No |
| Developed for | Research, Clinical practice |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
The JIA parent global assessment is scored based on a visual analogue scale (VAS) ranging from 0 to 10. Parents are asked to place a mark on the line to indicate how their child is doing, considering all the ways that arthritis affects them. The scale is anchored by the words 0 (very well) and 10 (very poor). |
| Score Interpretation | A higher score indicates poorer well-being and greater impact of arthritis on the child's daily life. Conversely, a lower score suggests better overall well-being and less impact of arthritis. |
| Cut-off points | --- |
| Cut-off points applied to | --- |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | --- |
| Completion time by the patient | - minutes |
| Scoring time by the assessor | - minutes |
| Training to score | Not necessary |
| Strengths | Easy to use, Useful in clinical practice & research |
| Limitations | --- |
| OTHER COMMENTS | |
| Other Comments |
For further information, please contact the developers. |