| Name of the Instrument/Tool | RAKE (RA Knowledge questionnairE) |
| First Description |
Rodère M, Pereira B, Soubrier M, Fayet F, Piperno M, Pallot-Prades B, Pouplin S, Baudens G, Cohen JD, Coquerelle P, Grange L, Sordet C, Tropé S, Gossec L, Beauvais C. Development and validation of a self-administered questionnaire measuring essential knowledge in patients with rheumatoid arthritis. Rheumatol Int. 2022 Oct;42(10):1785-1795. doi: 10.1007/s00296-022-05090-8. Epub 2022 Apr 7. PMID: 35389078; PMCID: PMC9439984. |
| Year | 2022 |
| Domains | |
| Concept of constructs | Disease knowledge |
| Population/Disease | Generic |
| Originally developed for | Rheumatoid Arthritis (RA) |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | French |
| Available in Language | French, English |
| REFERENCE IDENTIFICATION | |
| Author/s | Rodère M, Pereira B, Soubrier M, Fayet F, Piperno M, Pallot-Prades B, Pouplin S, Baudens G, Cohen JD, Coquerelle P, Grange L, Sordet C, Tropé S, Gossec L, Beauvais C. |
| Title | Development and validation of a self-administered questionnaire measuring essential knowledge in patients with rheumatoid arthritis. |
| Journal | Rheumatol Int. |
| Year | 2022 |
| Vol | 42 |
| Num | 10 |
| Pages | 1785-95 |
| Country | France |
| Language | English |
| Other references of interest | |
| No other References. | |
| Instrument/Tool Translations References | |
| No other References. | |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Malory Rodère |
| mrodere@chu-clermontferrand.fr. | |
| Address | Rheumatology Department, Centre Hospitalier Universitaire Gabriel Montpied, Clermont-Ferrand, France |
| Website | --- |
| Available | --- |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Questionnaire |
| Brief Description |
The RAKE (RA Knowledge Questionnaire) is a self-administered questionnaire that assesses knowledge of various aspects related to rheumatoid arthritis (RA), including disease, comorbidity, pharmacological treatments, non-pharmacological treatments, self-care, and adaptive skills. The long form of the questionnaire consists of 6 knowledge domains with a total of 45 items. Compared to prior questionnaires, RAKE contains fewer questions about the causes and symptoms of RA but includes more questions about topics such as the role of tobacco consumption in RA onset, pharmacological strategies, and biologic disease-modifying antirheumatic drugs (bDMARDs), as well as physical activity and adaptive skills such as patients' pathway, relation with healthcare professionals, shared decision making, and patient education. |
| Number of Items | 45-items, with a 32-item short-form survey. |
| Range | Scored 0-100, |
| Responses options/scale |
No |
| Developed for | Research, Clinical practice |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
RAKE is scored from 0 to 100. |
| Score Interpretation | Higher scores indicate higher levels of knowledge. |
| Cut-off points | --- |
| Cut-off points applied to | --- |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | --- |
| Completion time by the patient | - minutes |
| Scoring time by the assessor | - minutes |
| Training to score | Not necessary |
| Strengths | Easy to use, Useful in clinical practice & research |
| Limitations | --- |
| OTHER COMMENTS | |
| Other Comments |
The RAKE questionnaire was constructed with input from healthcare professionals and patients at each stage of the process and showed good acceptability, internal and external consistency, test-retest reproducibility, and sensitivity to change. The RAKE addresses patients' needs for knowledge related to targeted drugs, safety messages on pharmacological treatments, and treatment strategies, such as early management, the goal of remission, and shared decision making in accordance with international guidelines. |