| Name of the Instrument/Tool | Combined AS questionnaire for quality of life (CASQ-QoL) |
| First Description |
El Miedany Y, El Gaafary M, El Aroussy N, Ahmed I, Youssef S, Palmer D. Patient reported outcomes in ankylosing spondylitis: development and validation of a new questionnaire for functional impairment and quality of life assessment. Clin Exp Rheumatol. 2011;29:801–810 |
| Year | 2011 |
| Domains | |
| Concept of constructs | Health related quality of life |
| Population/Disease | Disease specific |
| Originally developed for | Ankylosing spondylitis (AS) |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | Arabic |
| Available in Language | English, Arabic |
| REFERENCE IDENTIFICATION | |
| Author/s | El Miedany Y, El Gaafary M, El Aroussy N, Ahmed I, Youssef S, Palmer D. |
| Title | Patient reported outcomes in ankylosing spondylitis: development and validation of a new questionnaire for functional impairment and quality of life assessment. |
| Journal | Clin Exp Rheumatol. |
| Year | 2011 |
| Vol | 29 |
| Num | 5 |
| Pages | 80-10 |
| Country | Egypt |
| Language | English |
| Other references of interest | |
| Link | https://pubmed.ncbi.nlm.nih.gov/22011622/ |
| Brief Description |
El Miedany Y, El Gaafary M, El Aroussy N, Ahmed I, Youssef S, Palmer D. Patient reported outcomes in ankylosing spondylitis: development and validation of a new questionnaire for functional impairment and quality of life assessment. Clin Exp Rheumatol. 2011 Sep-Oct;29(5):801-10. Epub 2011 Oct 31. PMID: 22011622. |
| Link | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9338652/ |
| Brief Description |
He Q, Luo J, Chen J, Yang J, Yao C, Xu C, Tao Q. The validity and reliability of quality of life questionnaires in patients with ankylosing spondylitis and non-radiographic axial spondyloarthritis: a systematic review and meta-analysis. Health Qual Life Outcomes. 2022 Jul 30;20(1):116. doi: 10.1186/s12955-022-02026-5. PMID: 35907948; PMCID: PMC9338652. |
| Instrument/Tool Translations References | |
| No other References. | |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Prof. Yasser El Miedany |
| yasser_elmiedany@yahoo.com | |
| Address | King’s College London, London, England |
| Website | --- |
| Available | --- |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Questionnaire |
| Brief Description |
Using Rasch analysis and 71 questions item pool, content analysis and semi structured group discussion, the CASQ was developed. A multicentre study aiming at developing two questionnaires for assessment of functional disability and quality of life was conducted. All patients included in this work met the modified New York criteria for AS. The CASQ includes a 10-item scale to assess functional impairment (CASQ-FI), and 10 items to assess quality of life (CASQ-QoL). |
| Number of Items | 10 |
| Range | Total score for the questionnaire ranges from 0–3. |
| Responses options/scale |
Yes without any difficulty- unable to do |
| Developed for | Research, Clinical practice |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
4 choices: without any difficulty (=0), with some difficulty (=1), with much difficulty (=2), unable to do (=3). The score is the sum of individual item score divided by 10 or the mean of the item score if 8 or 9 items are completed. For CASQ-QoL there is also the option “Not applicable”. In this case, the “not applicable” questions are excluded from the scoring and the total score is divided by only the number of questions that have been answered by patient. |
| Score Interpretation | Higher scores reflect worse health related quality of life (CASQ-QoL). |
| Cut-off points | --- |
| Cut-off points applied to | --- |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | --- |
| Completion time by the patient | 2 minutes |
| Scoring time by the assessor | 1 minutes |
| Training to score | Not necessary |
| Strengths | Easy to use |
| Limitations | --- |
| OTHER COMMENTS | |
| Other Comments | --- |