| Name of the Instrument/Tool | Psoriatic Arthritis Impact of Disease (PsAID-9 and PsAID-12) |
| First Description |
Gossec L, de Wit M, Kiltz U, Braun J, Kalyoncu U, Scrivo R, et al. A patient-derived and patient-reported outcome measure for assessing psoriatic arthritis: elaboration and preliminary validation of the Psoriatic Arthritis Impact of Disease (PsAID) questionnaire, a 13-country EULAR initiative. Annals of the rheumatic diseases. 2014;73(6):1012-9. |
| Year | 2014 |
| Domains | |
| Concept of constructs | Anxiety and depression, Coping & helplessness, Fatigue, Global assessment, Health related quality of life, Pain, Physical function, Skin |
| Population/Disease | Disease specific |
| Originally developed for | Psoriatic Arthritis (PsA) |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | English |
| Available in Language | Dutch, English, Estonian, French, German, Hungarian, Irish, Italian, Norwegian, Romanian, Spanish, Turkish |
| REFERENCE IDENTIFICATION | |
| Author/s | Gossec L, de Wit M, Kiltz U, Braun J, Kalyoncu U, Scrivo R, Maccarone M, Carton L, Otsa K, Sooäär I, Heiberg t, Bertheussen H, Cañete JD, Sánchez Lombarte A, Balanescu A, Dinte A, de Vlam K, Smolen J, Stamm T, Niedermayer D, Békés G, Veale D, Helliwell P, Parkinson A, Luger T, Kvien TK |
| Title | A patient-derived and patient-reported outcome measure for assessing psoriatic arthritis: elaboration and preliminary validation of the Psoriatic Arthritis Impact of Disease (PsAID) questionnaire, a 13-country EULAR initiative |
| Journal | Annals of Rheumatic Diseases |
| Year | 2014 |
| Vol | 73 |
| Num | 6 |
| Pages | 1012-1019 |
| Country | international, multicentre |
| Language | English |
| Other references of interest | |
| Link | https://pubmed.ncbi.nlm.nih.gov/29146740/ |
| Brief Description |
This study assesses the validity in an independent cohort of patients, estimate the minimally important difference for improvement and explore the potential of individual components of the PsAID in clinical practice |
| Link | https://pubmed.ncbi.nlm.nih.gov/27909086/ |
| Brief Description |
This study assesses the construct validity, the reliability, and the interpretability of the PsAID-12 questionnaire in patients with psoriatic arthritis (PsA). |
| Link | https://pubmed.ncbi.nlm.nih.gov/31101369/ |
| Brief Description |
This study aimed to validate the PsAID and determine if the PsAID can replace the HAQ in the MDA. |
| Instrument/Tool Translations References | |
| Link | http://pitie-salpetriere.aphp.fr/psaid/raid_psaid_quest_home … |
| Brief Description |
Tool to get access to the PSAID in different languages |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Laure Gossec |
| laure.gossec@psl.aphp.fr | |
| Address | Hôpital Pitié-Salpétrière, Service de Rhumatologie, 47-83, boulevard de l'Hôpital - 75013 Paris France |
| Website | http://pitie-salpetriere.aphp.fr/psaid/raid_psaid_quest_home.php |
| Available | --- |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Composite Index, NRS, Questionnaire |
| Brief Description |
The PsAID questionnaire assesses impact of disease from the patient perspective. Two versions of the questionnaire are available: one for clinical practice with 12 domains (PsAID 12) and one for clinical trials with 9 domains (PsAID 9). It covers physical and psychological aspects, as well as social and intermediary aspects such as fatigue. Domains of PsAID 9: pain, skin problems, fatigue, ability to work/leisure, functional capacity, feeling of discomfort, sleep disturbance, anxiety, fear and uncertainty, and coping. Domains of PsAID 12: the 9 domains from PsAID plus embarassment/ shame due to appearance, social participation, and depression. |
| Number of Items | 12 or 9 |
| Range | 0-10 |
| Responses options/scale |
Yes with higher numbers indicating worse status. |
| Developed for | Clinical practice, Research |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
The PsAID calculation is based on the NRS questions and the weights of each domain. Calculators are available at http://pitie-salpetriere.aphp.fr/psaid/raid_psaid_quest_home.php |
| Score Interpretation | Higher punctuations (closer to 10) indicate worse disease status. |
| Cut-off points | Patient acceptable symptom state (PASS) is 4 for both scores (PsAID 9, PsAID 12) |
| Cut-off points applied to | Both |
| Smallest detectable change if described | 1.41 |
| Smallest detectable change applied to | --- |
| Completion time by the patient | 3 minutes |
| Scoring time by the assessor | 1 minutes |
| Training to score | Not necessary |
| Strengths | Easy to use, Useful in clinical practice & research |
| Limitations | Complex scoring |
| OTHER COMMENTS | |
| Other Comments | --- |