| Name of the Instrument/Tool | RACER (Readiness for Adult Care in Rheumatology) |
| First Description |
Spiegel L, Tucker L, Duffy KW, et al. Development and validation of the RACER (Readiness for Adult Care in Rheumatology) transition instrument in youth with juvenile idiopathic arthritis. Pediatr Rheumatol Online J. 2021 Jun 5;19(1):83. |
| Year | 2021 |
| Domains | |
| Concept of constructs | Needs assessment |
| Population/Disease | Disease specific |
| Originally developed for | Juvenile Idiopathic Arthritis (JIA) |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | English |
| Available in Language | --- |
| REFERENCE IDENTIFICATION | |
| Author/s | Spiegel L, Tucker L, Duffy KW, Lalloo C, Hundert A, Bourre-Tessier J, Hazel E, Luca N, Mosher D, Nguyen C, Stringer E, Victor C, Stinson J |
| Title | Development and validation of the RACER (Readiness for Adult Care in Rheumatology) transition instrument in youth with juvenile idiopathic arthritis. |
| Journal | Pediatr Rheumatol Online J. |
| Year | 2021 |
| Vol | 19 |
| Num | 1 |
| Pages | 83 |
| Country | Canada |
| Language | English |
| Other references of interest | |
| No other References. | |
| Instrument/Tool Translations References | |
| No other References. | |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Jennifer Stinson |
| jennifer.stinson@sickkids.ca | |
| Address | The Hospital for Sick Children 686 Bay Street Toronto, ON M5G 0A4 |
| Website | --- |
| Available | Contact Dr. Jennifer Stinson for premission and licensing. |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Score |
| Brief Description |
The 32-item RACER self-report instrument is designed to measure stages of readiness for key transition-related skills, and is organized into the following domains: General Knowledge (8 items), Knowledge About Medications (3 items), Planning For Adult Life (5 items), Managing Your Health Condition (6 items), Standing Up For Yourself (6-items), and Knowing How to Get Around the Healthcare System (4-items). |
| Number of Items | 32 |
| Range | 0-100 |
| Responses options/scale |
Yes Yes/No - General Knowledge domains Yes/No/Not applicable - Knowledge about medication. Four-point likert scale, ranging fom (“I do not know how but I want to learn”) to (“I always do this when I need to”) for remaining domains |
| Developed for | --- |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
A summative sub-score was calculated for each individual domain and then rescaled to range from 0 to 100. The equally weighted average across each domain was then calculated to create a total score (0-100). Respondents who indicated “not applicable” for the medication subscale, had their average score calculated out of 5 domains, whereas the scores for those respondents who were on medication were calculated out of 6 domains. |
| Score Interpretation | Higher scores indicate greater transition readiness |
| Cut-off points | --- |
| Cut-off points applied to | --- |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | --- |
| Completion time by the patient | 4.7 minutes |
| Scoring time by the assessor | - minutes |
| Training to score | Not necessary |
| Strengths | Easy to use, Useful in clinical practice & research |
| Limitations | --- |
| OTHER COMMENTS | |
| Other Comments | --- |