| Name of the Instrument/Tool | Patient Experienced Symptom State (PESS) |
| First Description |
Duarte C, Santos E, da Silva JAP, Kristianslund EK, Kvien TK, Dougados M, de Wit M, Gossec L, Heiberg T. The Patient Experienced Symptom State (PESS): a patient-reported global outcome measure that may better reflect disease remission status. Rheumatology (Oxford). 2020 Nov 1;59(11):3458-3467. |
| Year | 2020 |
| Domains | |
| Concept of constructs | Disease activity |
| Population/Disease | Disease specific |
| Originally developed for | Rheumatoid Arthritis (RA) |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | English |
| Available in Language | French, Norwegian |
| REFERENCE IDENTIFICATION | |
| Author/s | Duarte C, Santos E, da Silva JAP, Kristianslund EK, Kvien TK, Dougados M, de Wit M, Gossec L, Heiberg T. |
| Title | The Patient Experienced Symptom State (PESS): a patient-reported global outcome measure that may better reflect disease remission status. |
| Journal | Rheumatology (Oxford). |
| Year | 2020 |
| Vol | 59 |
| Num | 11 |
| Pages | 3458-67 |
| Country | Multinational |
| Language | English |
| Other references of interest | |
| Link | https://pubmed.ncbi.nlm.nih.gov/32375173/ |
| Brief Description |
Patient Experienced Symptom State (PESS) development study |
| Link | https://pubmed.ncbi.nlm.nih.gov/32375173/ |
| Brief Description |
The Patient Experienced Symptom State (PESS): a patient-reported global outcome measure that may better reflect disease remission status |
| Link | https://pubmed.ncbi.nlm.nih.gov/35482485/ |
| Brief Description |
Patient Experienced Symptom State in rheumatoid arthritis: sensitivity to change in disease activity and impact. |
| Instrument/Tool Translations References | |
| No other References. | |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Cátia Duarte |
| catiacmduarte@gmail.com | |
| Address | Department of Rheumatology, Centro Hospitalar e Universitário de Coimbra, Coimbra. |
| Website | --- |
| Available | --- |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Score |
| Brief Description |
The PESS assesses disease activity status and impact of disease through the question ‘Consider how your rheumatic disease has affected you during the last week. If you remain in the coming months as you have been the last week, how would you rate your condition?’, offering a 5-level Likert scale response. |
| Number of Items | 1 |
| Range | 0-5 |
| Responses options/scale |
Yes 5 responses: "very bad"-"very good" |
| Developed for | Research, Clinical practice |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
5-level Likert scale response. |
| Score Interpretation | ‘very bad’, ‘bad’, ‘acceptable’, ‘good’ and ‘very good’ |
| Cut-off points | Cut-off values corresponding to 'good' and 'very good' PESS states were in the range of low disease activity/remission for DAS28, DCAI and SDAI |
| Cut-off points applied to | Research, Routine care |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | --- |
| Completion time by the patient | <1 minutes |
| Scoring time by the assessor | <1 minutes |
| Training to score | Not necessary |
| Strengths | Useful in clinical practice & research, Easy to use |
| Limitations | --- |
| OTHER COMMENTS | |
| Other Comments |
The results of the seminal study indicated that a ‘very good’ PESS status corresponds to low impact of disease on mHAQ (0) and each of the seven domains of health addressed by the RAID score (scores <1). This was further supported by the high areas under the curve (>80%) for all outcome measures, suggesting that PESS adequately captures the overall impact of RA. These findings suggest that PESS could be more suitable to capture the overall impact of RA than PGA, which is more influenced by pain, fatigue and function than by disease activity. |