| Name of the Instrument/Tool | Lupus Impact Tracker (LIT) |
| First Description |
Jolly M, Garris CP, Mikolaitis RA, Jhingran PM, et al. Development and validation of the Lupus Impact Tracker: a patient-completed tool for clinical practice to assess and monitor the impact of systemic lupus erythematosus. Arthritis Care Res (Hoboken). 2014 Oct;66(10):1542-50. |
| Year | 2014 |
| Domains | |
| Concept of constructs | Health related quality of life |
| Population/Disease | Disease specific |
| Originally developed for | Systemic Lupus Erythematosus (SLE) |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | English |
| Available in Language | Spanish, French, German, Swedish, Italian |
| REFERENCE IDENTIFICATION | |
| Author/s | Jolly M, Garris CP, Mikolaitis RA, Jhingran PM, Dennis G, Wallace DJ, Clarke A, Dooley MA, Parke A, Strand V, Alárcon GS, Kosinski M |
| Title | Development and validation of the Lupus Impact Tracker: a patient-completed tool for clinical practice to assess and monitor the impact of systemic lupus erythematosus. |
| Journal | Arthritis Care Res (Hoboken) |
| Year | 2014 |
| Vol | 66 |
| Num | 10 |
| Pages | 1542-50 |
| Country | USA |
| Language | English |
| Other references of interest | |
| Link | https://pubmed.ncbi.nlm.nih.gov/26814452/ |
| Brief Description |
Prospective Validation of the Lupus Impact Tracker: A Patient-Completed Tool for Clinical Practice to Evaluate the Impact of Systemic Lupus Erythematosus |
| Link | https://pubmed.ncbi.nlm.nih.gov/27587460/ |
| Brief Description |
The lupus impact tracker is responsive to changes in clinical activity measured by the systemic lupus erythematosus responder index |
| Link | https://pubmed.ncbi.nlm.nih.gov/33091273/ |
| Brief Description |
Health-Related Quality of Life Measures in Adult Systemic Lupus Erythematosus |
| Instrument/Tool Translations References | |
| Link | https://pubmed.ncbi.nlm.nih.gov/28204765/ |
| Brief Description |
Cross-cultural validation of Lupus Impact Tracker in five European clinical practice settings |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Meenakshi Jolly |
| meenakshi_Jolly@rush.edu | |
| Address | 1611 W Harrison St, Orthopedic Building Suite 510 Chicago, IL, 60612 |
| Website | --- |
| Available | --- |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Scale |
| Brief Description |
The LIT is a brief disease-specific instrument used to assess and monitor the impact of SLE on QoL. Items for the LIT were selected using psychometric, clinimetric, and focus group methods from the LupusPRO, a validated patient-reported outcomes measure. Items include concentration, medication side effects, fulfilling family responsibilities, feelings of being worn out upon waking, bodily pain and aching, limitation of activities due to pain/fatigue, anxiety, depression, self-consciousness related to physical appearance, and ability to plan activities. |
| Number of Items | 10 |
| Range | 0-100 |
| Responses options/scale |
Yes Five-point Likert scale |
| Developed for | Research, Clinical practice |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
Patients rank individual items on a scale of 0 to 4, and an overall score ranging from 0 to 100 is derived via a multiplication factor of 2.5. Normative data are not available. |
| Score Interpretation | Higher scores indicate greater negative impact of SLE |
| Cut-off points | --- |
| Cut-off points applied to | --- |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | --- |
| Completion time by the patient | <2 minutes |
| Scoring time by the assessor | - minutes |
| Training to score | Not necessary |
| Strengths | Useful in clinical practice & research, Widely used |
| Limitations | --- |
| OTHER COMMENTS | |
| Other Comments |
The characteristics of the validation cohorts included a disease duration of approximately 13 years, mean SLEDAI scores ranging from 3.9 to 6.4, and a mean SDI score of 1.0. |