Detailled Information

Filocamo G, Consolaro A, Schiappapietra B, Dalprà S, Lattanzi B, Magni-Manzoni S, Ruperto N, Pistorio A, Pederzoli S, Civino A, Guseinova D, Masala E, Viola S, Martini A, Ravelli A. A new approach to clinical care of juvenile idiopathic arthritis: the Juvenile Arthritis Multidimensional Assessment Report. J Rheumatol. 2011 May;38(5):938-53.

The difference of disease perception by juvenile idiopathic arthritis patients and their parents: analysis of the JAMAR questionnaire

Evaluation of quality of life in juvenile idiopathic arthritis using Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Measures of Pediatric Function and Physical Activity in Arthritis

Validity and Reliability of Four Parent/Patient-Reported Outcome Measures for Juvenile Idiopathic Arthritis Remote Monitoring: https://pubmed.ncbi.nlm.nih.gov/35015379/

The American English version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). 

Cross-cultural adaptation and psychometric evaluation of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) in 54 languages across 52 countries: review of the general methodology

The Italian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

The JAMAR is used to examine disease activity and disability among children with JIA, and it contains items deemed relevant by parents and children. The JAMAR is recommended by the PRINTO.

The JAMAR includes items addressing well-being, pain, function, health-related quality of life, morning stiffness, disease activity, disease status, joint and extraarticular disease, compliance, side effects, and overall satisfaction with illness outcome.

The PF subscale has 15 items that score the child's ability to complete each task as follows: 0 = without difficulty, 1 = with some difficulty, 2 = with much difficulty, 3 = unable to do, and N/A if it was not possible to answer the question or the patient was unable to perform the task because of their young age or to reasons other than JIA. The total PF score has three components: PF lower limbs (PF-LL); PF hand and wrist (PF-HW), and PF upper segment (PF-US), each scoring from 0-15 . Pain intensity is rated on a 21-numbered circle VAS (0 = no pain; 10 = very severe pain) . The Pediatric Rheumatology Quality of Life Scale (HRQoL) includes two subdimensions, physical health (PhH) and psychosocial health (PsH). Each component has five items. The responses are never (score = 0), sometimes (score = 1), most of the time (score = 2), and all the time (score = 3). Overall well-being is measured using a 21-numbered circle VAS (0 = very well; 10 = very poorly), and disease activity is measured on a 21-numbered VAS (0 = no activity; 10 = maximum activity).

Joint pain and swelling are indicated by their presence or absence for the following joints: cervical spine, lumbosacral spine, shoulders, elbows, wrists, small hand joints, hips, knees, ankles, and small foot joints. Morning stiffness and extraarticular symptoms (eg, fever or rash) are also recorded as present or absent. Disease status at the clinical visit is noted as remission, continued activity, or relapse. The patient's disease course is compared with the prior visit and recorded as much improved, slightly improved, stable, slightly worsened, or much worsened. The JAMAR includes a list of medications the child may be taking along with a list of side effects of medications and difficulties with taking medications. A list of items related to problems with school due to the child's JIA is provided, and the final component is an item regarding satisfaction with the outcome of the illness (yes/no).

Responses to the scales and subscales (PF-LL, PF-HW, PF-US, HRQoL, HRQoL-PH and HRQoL-PsH) are summed.

Age range of 7 to 18 years for use as a self-report