| Name of the Instrument/Tool | Scleroderma Skin Patient-Reported Outcome (SSPRO) |
| First Description |
Man A, Correa JK, Ziemek J, Simms RW, Felson DT, Lafyatis R. Development and validation of a patient-reported outcome instrument for skin involvement in patients with systemic sclerosis. Ann Rheum Dis. 2017;76(8):1374-1380. |
| Year | 2017 |
| Domains | |
| Concept of constructs | Health related quality of life |
| Population/Disease | Disease specific |
| Originally developed for | Systemic sclerosis |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | Enlish |
| Available in Language | --- |
| REFERENCE IDENTIFICATION | |
| Author/s | Man A, Correa JK, Ziemek J, Simms RW, Felson DT, Lafyatis R |
| Title | Development and validation of a patient-reported outcome instrument for skin involvement in patients with systemic sclerosis |
| Journal | Ann Rheum Dis |
| Year | 2017 |
| Vol | 76 |
| Num | 8 |
| Pages | 1374-1380 |
| Country | Canada |
| Language | English |
| Other references of interest | |
| Link | https://acrabstracts.org/abstract/development-of-a-skin-spec … |
| Brief Description |
Development of a Skin-Specific Scleroderma Patient Reported Outcome Instrument [abstract] |
| Link | https://pubmed.ncbi.nlm.nih.gov/33091259/ |
| Brief Description |
An Update of Outcome Measures in Systemic Sclerosis. An Update of Outcome Measures in Systemic Sclerosis |
| Instrument/Tool Translations References | |
| No other References. | |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Ada Man |
| adamanemail@gmail.com | |
| Address | Section of Rheumatology, Resp/Rehab Building, RR149 - 800 Sherbrook. University of MAnitoba, Canada. |
| Website | --- |
| Available | --- |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Questionnaire |
| Brief Description |
The instrument assesses the skin-related quality of life in patients with SSc. It covers the following four domains: physical effects, physical limitations imposed by skin tightness, emotional effects and social effects |
| Number of Items | 18 |
| Range | 0-108 |
| Responses options/scale |
No |
| Developed for | --- |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
Each item is scored on a seven-point Likert scale (0 = better and 6 = worse), and the SSPRO total score is the sum of all items (maximum=108), with a 4-week recall period |
| Score Interpretation | HIgher scores indicate worse skin-related quality of life. |
| Cut-off points | --- |
| Cut-off points applied to | --- |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | --- |
| Completion time by the patient | - minutes |
| Scoring time by the assessor | - minutes |
| Training to score | Not necessary |
| Strengths | Useful in clinical practice & research |
| Limitations | --- |
| OTHER COMMENTS | |
| Other Comments | --- |