| Name of the Instrument/Tool | Ankylosing Spondylitis Quality of Life (ASQoL) |
| First Description |
Doward LC, Spoorenberg A, Cook SA, Whalley D, Helliwell PS, Kay LJ, McKenna S P, Tennant A, van der Heijde D, Chamberlain M A. Development of the ASQoL: a quality of life instrument specific to ankylosing spondylitis. Ann Rheum Dis 2003;62(1):20–6. |
| Year | 2003 |
| Domains | |
| Concept of constructs | Health related quality of life |
| Population/Disease | Disease specific |
| Originally developed for | Ankylosing spondylitis (AS) |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | English and Dutch |
| Available in Language | Chinese, Estonian, Portuguese, Norwegian, Spanish, Croatian, Russian, Hungarian, Slovak, English, Korean, Greek, French, Arabic, Bulgarian, Polish, Turkish, Romanian, Danish, Dutch, Italian, Swedish, German, Finnish, Czech |
| REFERENCE IDENTIFICATION | |
| Author/s | Doward LC |
| Title | Development of the ASQoL: a quality of life instrument specific to ankylosing spondylitis |
| Journal | Ann Rheum Dis |
| Year | 2003 |
| Vol | 62 |
| Num | 1 |
| Pages | 20-6 |
| Country | United Kingdom and The Netherlands |
| Language | English and Dutch |
| Other references of interest | |
| Link | http://www.ncbi.nlm.nih.gov/pubmed/17266072 |
| Brief Description |
Evaluation and validation of the patient acceptable symptom state (PASS) in patients with ankylosing spondylitis. |
| Link | http://www.ncbi.nlm.nih.gov/pubmed/21199471 |
| Brief Description |
The ankylosing spondylitis quality of life questionnaire: validation in a New Zealand cohort. |
| Link | https://pubmed.ncbi.nlm.nih.gov/32607793/ |
| Brief Description |
This study assessed the relevance of the ASQoL items in patients with non-radiographic axial spondyloarthritis, a first step towards its validation in a different population. |
| Instrument/Tool Translations References | |
| Link | http://www.ncbi.nlm.nih.gov/pubmed/12480664 |
| Brief Description |
Development of the ASQoL: a quality of life instrument specific to ankylosing spondylitis (English and Dutch). |
| Link | http://www.ncbi.nlm.nih.gov/pubmed/17274818 |
| Brief Description |
Translation and validation of non-English versions of the Ankylosing Spondylitis Quality of Life (ASQOL) questionnaire (US English; Canadian French and English; French; German; Italian; Spanish; and Swedish). |
| Link | http://www.ncbi.nlm.nih.gov/pubmed/20525446 |
| Brief Description |
Development and validation of the French ASQoL questionnaire. |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Prof. Stephen McKenna |
| smckenna@galen-research.com | |
| Address | Galen Research Ltd, B1 Chorlton Mill, 3 Cambridge Street, Manchester, M1 5BY RachelSmith3/9/2021 |
| Website | --- |
| Available | Admin fee for non-commercial studies and student research |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Questionnaire |
| Brief Description |
Patient self-administered questionnaire used to measure the impact of ankylosing spondylitis (AS) on health-related quality of life. |
| Number of Items | 18 |
| Range | 0-18 |
| Responses options/scale |
Yes “Yes” or “No” responses. |
| Developed for | Both |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
Dichotomous responses, with 0 scored for a “no” and 1 scored for a “yes” for each item. Total score is the sum of the individual responses. |
| Score Interpretation | Ranges from 0 to 18, with higher scores reflecting greater impairment of health-related quality of life. |
| Cut-off points | --- |
| Cut-off points applied to | --- |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | --- |
| Completion time by the patient | 2 to 16 (median 4). minutes |
| Scoring time by the assessor | less than 1 minutes |
| Training to score | Not necessary |
| Strengths | Useful in clinical practice & research |
| Limitations | Copyrighted |
| OTHER COMMENTS | |
| Other Comments | --- |