| Name of the Instrument/Tool | Scleroderma HAQ (SHAQ) |
| First Description |
Steen VD, Medsger TA Jr. The value of the Health Assessment Questionnaire and special patient-generated scales to demonstrate change in systemic sclerosis patients over time. Arthritis Rheum. 1997 Nov;40(11):1984-91. doi: 10.1002/art.1780401110. PMID: 9365087. |
| Year | 1997 |
| Domains | |
| Concept of constructs | Functional status, Health related quality of life |
| Population/Disease | Disease specific |
| Originally developed for | Systemic sclerosis |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | English |
| Available in Language | French, Portuguese, Spanish, Turkish |
| REFERENCE IDENTIFICATION | |
| Author/s | Steen VD, Medsger TA Jr |
| Title | The value of the Health Assessment Questionnaire and special patient-generated scales to demonstrate change in systemic sclerosis patients over time. |
| Journal | Arthritis Rheum. |
| Year | 1997 |
| Vol | 40 |
| Num | 11 |
| Pages | 1984-91 |
| Country | USA |
| Language | English |
| Other references of interest | |
| Link | https://pubmed.ncbi.nlm.nih.gov/11188583/ |
| Brief Description |
The use of the Health Assessment Questionnaire (HAQ) to determine physical disability in systemic sclerosis. |
| Link | https://pubmed.ncbi.nlm.nih.gov/22588774/ |
| Brief Description |
Measures of systemic sclerosis: a review. |
| Link | https://pubmed.ncbi.nlm.nih.gov/28499034/ |
| Brief Description |
Functional disability and its predictors in systemic sclerosis |
| Instrument/Tool Translations References | |
| Link | https://pubmed.ncbi.nlm.nih.gov/30840212/ |
| Brief Description |
Turkish validation |
| Link | https://pubmed.ncbi.nlm.nih.gov/24788030/ |
| Brief Description |
Brazilian Portuguese Validation |
| Link | https://www.researchgate.net/publication/8056663_Validation_ … |
| Brief Description |
French Validation |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Virginia D Steen |
| steenv@georgetown.edu | |
| Address | Professor Division of Rheumatology Department of Medicine Georgetown University Medical Center LL Gorman 3900 Reservoir Road, NW Washington, DC 20057 |
| Website | --- |
| Available | --- |
| Links |
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| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Questionnaire |
| Brief Description |
The SHAQ is a questionnaire composed of the standard HAQ and additional VAS scales to measure symptoms specific to scleroderma and overall disease severity. It aims to measure disease status and changes in disease status over time in patients with SSc. It also includes the following scales: pain, patient global assessment, vascular, digital ulcers, lung involvement, and gastrointestinal involvement |
| Number of Items | 8 |
| Range | --- |
| Responses options/scale |
Yes 0–3 (where 0 = without difficulty and 3 = unable to do) |
| Developed for | --- |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
The SHAQ is scored like the HAQ, and the other domains are continuous VAS instruments that are measured and then changed to a 0–3 scale. Each area is scored, and the scores are not added together for the VAS components. Therefore, a score can be 1.25 on the HAQ, 0.5 on pain, and separate scores for each of the other items. |
| Score Interpretation | Higher scores indicate worse functionality |
| Cut-off points | --- |
| Cut-off points applied to | --- |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | --- |
| Completion time by the patient | 2 minutes |
| Scoring time by the assessor | 2 minutes |
| Training to score | Not necessary |
| Strengths | Easy to use, Useful in clinical practice & research, Widely used |
| Limitations | --- |
| OTHER COMMENTS | |
| Other Comments | --- |