| Other references of interest |
| Link |
https://pubmed.ncbi.nlm.nih.gov/21345815/
|
| Brief Description |
Seror R, Ravaud P, Mariette X, Bootsma H, Theander E, Hansen A, et al. EULAR Sjogren’s Syndrome Patient Reported Index (ESSPRI): development of a consensus patient index for primary Sjogren’s syndrome. Ann Rheum Dis 2011;70:968–72. doi:10.1136/ard.2010.143743.
|
| Link |
https://link.springer.com/article/10.1007/s00296-014-3008-0
|
| Brief Description |
Kotsis K, Voulgari P V., Tsifetaki N, Drosos AA, Carvalho AF, Hyphantis T. Illness perceptions and psychological distress associated with physical healthrelated quality of life in primary Sjögren’s syndrome compared to systemic lupus erythematosus and rheumatoid arthritis. Rheumatol Int 2014;34:1671– 81. doi:10.1007/s00296-014-3008-0.
|
| Link |
https://pubmed.ncbi.nlm.nih.gov/27390310/
|
| Brief Description |
Cornec D, Devauchelle-Pensec V, Mariette X, Jousse-Joulin S, Berthelot J-M, Perdriger A, et al. Severe Health-Related Quality-of-life Impairment in Active Primary Sjögren’s Syndrome Is Driven by Patient-Reported Outcomes: Data from a Large Therapeutic Trial. Arthritis Care Res (Hoboken) 2016. doi:10.1002/acr.22974.
|
| DESCRIPTION OF THE INSTRUMENT |
| Type Of Measure |
Questionnaire
|
| Brief Description |
The PSS-QoL is the first instrument for the evaluation of HRQL in PSS patients. The final version for testing of the PSS-QoL consisted of 25 questions in German language. Subsequently, an English Version of the PSS-QoL was developed. It is divided into a physical and psychosocial dimension, and all questions pertain to patients’ experiences within the last four weeks. PSS-QoL can be divided in the following domains: total score, physical, discomfort, dryness, psychosocial.
|
| Number of Items |
---
|
| Range |
The PSS-QoL ranges from 0 to 96 (for women) and from 0 to 92 (for men, excluding vaginal dryness).
|
| Responses options/scale |
Yes
ranging from 0 to 10; 5-point- Likert scale (0-4)
|
| Developed for |
Clinical practice, Research
|
| PRACTICAL APPLICATION |
| Method of administration |
Self-administered
|
| Recommendations to score |
The physical dimension consists of a numeric rating scale (NRS, ranging from 0 to 10) for discomfort and checkboxes for each physical symptom considered to impair HRQL. Symptom related questions can be answered by using checkboxes meaning “yes” if marked. Each “yes” adds 1 point to the score. The psychosocial dimension can be scored on a 5-point- Likert scale and contains 14 questions/statements with the following possible answers: never, rarely, sometimes, often and always. These questions can be scored 0 (=never) to 4 (=always).
|
| Score Interpretation |
Higher scores indicate worse quality of life
|
| Cut-off points |
---
|
| Cut-off points applied to |
---
|
| Smallest detectable change if described |
---
|
| Smallest detectable change applied to |
---
|
| Completion time by the patient |
4 minutes
|
| Scoring time by the assessor |
- minutes
|
| Training to score |
Not necessary
|
| Strengths |
Easy to use, Useful in clinical practice & research
|
| Limitations |
Not widely used
|