| Name of the Instrument/Tool | Lupus Patient-Reported Outcome Tool (LupusPRO) |
| First Description |
Jolly M, Pickard AS, Block JA, Kumar RB, Mikolaitis RA, Wilke CT, et al. Disease-Specific Patient Reported Outcome Tools for Systemic Lupus Erythematosus. Semin Arthritis Rheum 2012 Aug;42(1):56-65 |
| Year | 2012 |
| Domains | |
| Concept of constructs | Coping & helplessness, Health related quality of life, Satisfaction |
| Population/Disease | Disease specific |
| Originally developed for | Systemic Lupus Erythematosus (SLE) |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | English |
| Available in Language | Chinese, English |
| REFERENCE IDENTIFICATION | |
| Author/s | Jolly M, Pickard AS, Block JA, Kumar RB, Mikolaitis RA, Wilke CT, et al |
| Title | Disease-Specific Patient Reported Outcome Tools for Systemic Lupus Erythematosus |
| Journal | Semin Arthritis Rheum |
| Year | 2012 |
| Vol | 42 |
| Num | 1 |
| Pages | 56-65 |
| Country | USA |
| Language | English |
| Other references of interest | |
| No other References. | |
| Instrument/Tool Translations References | |
| Link | https://www.ncbi.nlm.nih.gov/pubmed/25156199 |
| Brief Description |
LupusPRO was translated into "traditional" Chinese, followed by pretesting among native Cantonese Chinese speakers |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Meenakshi Jolly |
| Meenakshi_Jolly@rush.edu. | |
| Address | Section of Rheumatology, Rush University Medical Center, 1611 West Harrison Street, Suite 510, Chicago, IL 60612 |
| Website | --- |
| Available | All rights reserved. Please contact the developer |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Questionnaire |
| Brief Description |
Patient report outcome tool which includes both health and non-health-related quality of life. HRQOL domains included (1) lupus symptoms; (2) physical health (physical function, role physical); (3) pain–vitality; (4) emotional health (emotional function and role emotional); (5) body image; (6) cognition; (7) procreation; and (8) lupus medications. Non-HRQOL domains were (1) available social support and coping; (2) desires–goals; and (3) satisfaction with medical care |
| Number of Items | 44 |
| Range | 0-100 |
| Responses options/scale |
Yes “Most of the time” & “All of the time” |
| Developed for | Not specified |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
Not described |
| Score Interpretation | Higher scores signifies better health |
| Cut-off points | --- |
| Cut-off points applied to | Not specified |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | --- |
| Completion time by the patient | 0 minutes |
| Scoring time by the assessor | 0 minutes |
| Training to score | Not necessary |
| Strengths | --- |
| Limitations | Copyrighted |
| OTHER COMMENTS | |
| Other Comments | --- |