| Name of the Instrument/Tool | skin self-assessment questionnaire in systemic sclerosis |
| First Description |
Nagy Z, Bálint Z, Farkas H, Radics J, Kumánovics G, Minier T, Varjú C, Czirják L. Establishment and partial validation of a patient skin self-assessment questionnaire in systemic sclerosis. Rheumatology (Oxford). 2009 Mar;48(3):309-14. doi: 10.1093/rheumatology/ken490 |
| Year | 2009 |
| Domains | |
| Concept of constructs | Skin |
| Population/Disease | Disease specific |
| Originally developed for | Systemic sclerosis |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | --- |
| Available in Language | English, Hungarian |
| REFERENCE IDENTIFICATION | |
| Author/s | Nagy Z, Bálint Z, Farkas H, Radics J, Kumánovics G, Minier T, Varjú C, Czirják L. |
| Title | Establishment and partial validation of a patient skin self-assessment questionnaire in systemic sclerosis. |
| Journal | Rheumatology (Oxford) |
| Year | 2009 |
| Vol | 48 |
| Num | 3 |
| Pages | 309-314 |
| Country | Hungary |
| Language | English |
| Other references of interest | |
| No other References. | |
| Instrument/Tool Translations References | |
| No other References. | |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Laszlo´ Czirjak |
| laszlo.czirjak@aok.pte.hu | |
| Address | Department of Immunology and Rheumatology, Clinic Center, University of Pecs, Hungary. |
| Website | --- |
| Available | --- |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Questionnaire |
| Brief Description |
skin self-assessment questionnaire for the evaluation of skin thickening in systemic sclerosis |
| Number of Items | 17 (face, anterior chest, abdomen, upper arms, forearms, hands, fingers, thighs, lower legs and feet) |
| Range | 0-51 |
| Responses options/scale |
Yes Likert 0-3 (overall thickness/tethering/thinness score) |
| Developed for | Not specified |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score | --- |
| Score Interpretation | --- |
| Cut-off points | --- |
| Cut-off points applied to | --- |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | --- |
| Completion time by the patient | 8-10 minutes |
| Scoring time by the assessor | 0 minutes |
| Training to score | Not necessary |
| Strengths | --- |
| Limitations | --- |
| OTHER COMMENTS | |
| Other Comments |
Floor and ceiling effects were evaluated separately in the two scleroderma subsets: 1) dcSSc: floor and ceiling effects could be observed in <15% 2) lcSSc: floor effect was found in the lcSSc group in a higher proportion. |