| Name of the Instrument/Tool | Symptom Burden Index (SBI) |
| First Description |
Kallen MA, Mayes MD, Kriseman YL, de Achaval SB, Cox VL, Suarez-Almazor ME. The symptom burden index: development and initial findings from use with patients with systemic sclerosis. J Rheumatol. 2010 Aug 1;37(8):1692-8. |
| Year | 2010 |
| Domains | |
| Concept of constructs | Health related quality of life |
| Population/Disease | Disease specific |
| Originally developed for | Systemic sclerosis |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | --- |
| Available in Language | English |
| REFERENCE IDENTIFICATION | |
| Author/s | Kallen MA, Mayes MD, Kriseman YL, de Achaval SB, Cox VL, Suarez-Almazor ME. |
| Title | The symptom burden index: development and initial findings from use with patients with systemic sclerosis. |
| Journal | J Rheumatol. |
| Year | 2010 |
| Vol | 37 |
| Num | 8 |
| Pages | 1692-8 |
| Country | --- |
| Language | English |
| Other references of interest | |
| Link | Suarez-Almazor ME, Kallen MA, Roundtree AK, Mayes M. Disease … |
| Brief Description | --- |
| Instrument/Tool Translations References | |
| No other References. | |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | M. A. Kallen and Maria E. Suarez-Almazor |
| makallen@mdanderson.org; MSAlmazor@mdanderson.org | |
| Address | Department of General Internal Medicine, Ambulatory Treatment and Emergency Care, The University of Texas M.D. Anderson Cancer Center, PO Box 301402, Unit 1465, Houston, TX 77230-1402, USA. |
| Website | --- |
| Available | --- |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Questionnaire |
| Brief Description |
The SBI determines the effects of SSc from a patient’s perspective 8-problem areas (skin, hand mobility, calcinosis, shortness of breath, eating, bowel, sleep, and pain) |
| Number of Items | 40 (5 questions in each of 8 domains) |
| Range | 0-10 |
| Responses options/scale |
Yes or importance of a burden. |
| Developed for | --- |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
Scoring is done for each scale with the average burden score reported per problem area |
| Score Interpretation | Questions answered in Likert scale Scoring for each domain 0–10. |
| Cut-off points | --- |
| Cut-off points applied to | --- |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | --- |
| Completion time by the patient | 0 minutes |
| Scoring time by the assessor | 0 minutes |
| Training to score | Not necessary |
| Strengths | Easy to use |
| Limitations | --- |
| OTHER COMMENTS | |
| Other Comments | --- |