Detailled Information

Name of the Instrument/Tool Systemic Lupus Activity Questionnaire (SLAQ)
First Description

Karlson EW, Daltroy LH, Rivest C, Ramsey-Goldman R, Wright EA, Partridge AJ, et al. Validation of a Systemic Lupus Activity Questionnaire (SLAQ) for population studies. Lupus 2003;12:280-6

Year 2003
Domains
Concept of constructs Disease activity
Population/Disease Disease specific
Originally developed for Systemic Lupus Erythematosus (SLE)
Other rheumatic diseases
where can be applied (only if validated)
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Additional population with no rheumatic diseases No
Language: Originally published in English
Available in Language Italian, Japanese, English, German
REFERENCE IDENTIFICATION
Author/s Karlson EW, Daltroy LH, Rivest C, Ramsey-Goldman R, Wright EA, Partridge AJ, et al
Title Validation of a Systemic Lupus Activity Questionnaire (SLAQ) for population studies.
Journal Lupus
Year 2003
Vol 12
Num 4
Pages 280-286
Country US
Language English
Other references of interest
Link https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3759159/
Brief Description

This paper explores the reliability, construct validity, and responsiveness of the SLAQ in a large observational cohort of patients with SLE.

Link https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3759159/
Brief Description

Validation of the Systemic Lupus Erythematosus Activity Questionnaire in a large observational cohort. 

Link https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3812450/
Brief Description

Measures of LES-a review.

Instrument/Tool Translations References
Link http://www.ncbi.nlm.nih.gov/pubmed/?term=Validation+and+eval …
Brief Description

The aim of this paper was to validate the SLAQ in German and evaluate its use in a large cohort of patients with SLE.

 The German version of the SLAQ shows a comparable validity as the original SLAQ. The scoring system is the same as the original version. 

DEVELOPER CONTACT INFORMATION
Correspondence to Elizabeth W Karlson
E-Mail ekarlson@partners.org
Address Brigham and Women's Hospital, Harvard Medical School, Boston, Massachusetts, USA. 75 Francis St. Boston, MA 02115, USA
Website ---
Available ---
Links ---
DESCRIPTION OF THE INSTRUMENT
Type Of Measure Questionnaire
Brief Description

SLAQ is a questionnaire based on items from the Systemic Lupus Activity Measure (SLAM) that were amenable to self-report as a more economical way of following and tracking large groups of SLE patients in epidemiological studies. 

SLAQ includes three aspects: It asks about presence or severity of lupus flare (no, mild, moderate or severe); questions on 24 specific symptoms of disease activity including: weight loss, fatigue, fevers, oral ulcers, malar rash, photosensitivity, vasculitis, other rashes, alopecia, lymphadenopathy, dyspnea, chest pain, Raynaud’s phenomenon, abdominal pain, paresthesia, seizures, stroke, memory loss, depression, headaches, myalgias, muscle weakness, arthralgias and joint swelling, and a single Patient Global Assessment question about severity of lupus activity over the past month (0= no activity to 10=most activity)

Number of Items 3 (lupus flare, list of 24 symptoms and disease activity)
Range 0-44
Responses options/scale Yes
Numerical Rating Scale (NRS) asking the patient to rate disease activity on a scale of 0 to 10 with the 0 anchored by ‘no activity’ and 10 anchored by ‘most activity’.
Developed for Both
PRACTICAL APPLICATION
Method of administration Self-administered, Online/Mail based, Interviewer/assessor
Recommendations to score

Items are weighted and aggregated in a manner analogous to the scoring system used in the SLAM, and scores can range from 0 to 44 for the disease-specific questions. Hence, there are 4 methods of scoring the SLAQ:

1) SLAQ score, based on the 24 symptom questions weighted in a manner analogous to the scoring of items covered on the SLAM (possible range 0 – 44)

2) Symptom Score, based on a count of positive responses within the 24 questions (possible range 0 – 24)

3) patient global assessment (PGA), based on the single question regarding presence and severity of lupus flare (possible range 0 – 3)

4) patient NRS, based on the single item numerical rating scale for global disease activity  (possible range 0-10)

Score Interpretation Higher score higher disease activity
Cut-off points ≥9 (Sensitivity=83%, Specificity=70% to predict a score of three points on the SLAM-no lab)
Cut-off points applied to Research
Smallest detectable change if described No described
Smallest detectable change applied to Not specified
Completion time by the patient <10 minutes
Scoring time by the assessor <10 minutes
Training to score Not necessary
Strengths Useful in clinical practice & research
Limitations ---
OTHER COMMENTS
Other Comments

The SLAQ is useful to identify patients with new or increased disease activity who need further evaluation by a physician, with a positive predictive value ranging from 56% to 89% for detecting clinically significant disease activity