| Name of the Instrument/Tool | Systemic Lupus Erythematosus Questionnaire on Family Role Functioning (SLE-FAMILY) |
| First Description |
Hassett AL, Li T, Radvanski DC, Savage SV, Buyske S, Schiff SA, et al. Assessment of health-related family role functioning in systemic lupus erythematosus: Preliminary validation of the SLE-FAMILY. Arthritis Care Res (Hoboken) 2012 Sep;64(9):1341-8 |
| Year | 2012 |
| Domains | |
| Concept of constructs | Health related quality of life |
| Population/Disease | Disease specific |
| Originally developed for | Systemic Lupus Erythematosus (SLE) |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | English |
| Available in Language | English |
| REFERENCE IDENTIFICATION | |
| Author/s | Hassett AL, Li T, Radvanski DC, Savage SV, Buyske S, Schiff SA, et al |
| Title | Assessment of health-related family role functioning in systemic lupus erythematosus: Preliminary validation of the SLE-FAMILY |
| Journal | Arthritis Care & Research |
| Year | 2012 |
| Vol | 64 |
| Num | 9 |
| Pages | 1341-1348 |
| Country | US |
| Language | English |
| Other references of interest | |
| No other References. | |
| Instrument/Tool Translations References | |
| No other References. | |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Afton L. Hassett |
| afton@med.umich.edu | |
| Address | University of Michigan Medical School, Chronic Pain & Fatigue Research Center, Domino’s Farms, Lobby M, PO Box 385, 24 Frank Lloyd Wright Drive, Ann Arbor, MI 48106 |
| Website | --- |
| Available | --- |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Questionnaire |
| Brief Description |
The SLE-FAMILY is a brief self-report questionnaire that provides an assessment of family role functioning in the context of the unique concerns of individuals with SLE. |
| Number of Items | 6 |
| Range | 1-7 |
| Responses options/scale |
Yes ” and “Completely limited my ability.” |
| Developed for | Not specified |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
A total score is achieved by summing the responses and dividing by the number of items with a response |
| Score Interpretation | Scores range from 1–7, with higher scores indicating worse family role functioning |
| Cut-off points | none |
| Cut-off points applied to | Not specified |
| Smallest detectable change if described | none |
| Smallest detectable change applied to | Not specified |
| Completion time by the patient | 0 minutes |
| Scoring time by the assessor | 0 minutes |
| Training to score | Not necessary |
| Strengths | --- |
| Limitations | --- |
| OTHER COMMENTS | |
| Other Comments | --- |