| Name of the Instrument/Tool | SLE quality of life questionnaire (L-QoL) |
| First Description |
Doward LC, McKenna SP, Whalley D, Tennant A, Griffiths B, Emery P, et al. The development of the L-QoL: a quality-of-life instrument specific to systemic lupus erythematosus. Ann Rheum Dis 2009;68:196-200. |
| Year | 2009 |
| Domains | |
| Concept of constructs | Health related quality of life |
| Population/Disease | Disease specific |
| Originally developed for | Systemic Lupus Erythematosus (SLE) |
| Other rheumatic diseases where can be applied (only if validated) |
--- |
| Additional population with no rheumatic diseases |
No |
| Language: Originally published in | English |
| Available in Language | Russian, English, Bulgarian, Estonian |
| REFERENCE IDENTIFICATION | |
| Author/s | Doward LC, McKenna SP, Whalley D, Tennant A, Griffiths B, Emery P, et al. |
| Title | The development of the L-QoL: a quality-of-life instrument specific to systemic lupus erythematosus. |
| Journal | Ann Rheum Dis |
| Year | 2009 |
| Vol | 68 |
| Num | --- |
| Pages | 196-200 |
| Country | USA |
| Language | English |
| Other references of interest | |
| No other References. | |
| Instrument/Tool Translations References | |
| No other References. | |
| DEVELOPER CONTACT INFORMATION | |
| Correspondence to | Jeanette Thorpe |
| gr@galen-research.com | |
| Address | Galen Research Ltd, B1 Chorlton Mill, 3 Cambridge Street, Manchester, M1 5BY |
| Website | www.galen-research.com |
| Available | --- |
| Links | --- |
| DESCRIPTION OF THE INSTRUMENT | |
| Type Of Measure | Questionnaire |
| Brief Description |
25-items questionnaire that provides a single unidimensional score representing the overall impact of SLE and its treatment on the patient |
| Number of Items | 25 |
| Range | 0-22 |
| Responses options/scale |
Yes Yes - “True” or “Not True” responses. |
| Developed for | Both |
| PRACTICAL APPLICATION | |
| Method of administration | Self-administered |
| Recommendations to score |
Dichotomous responses, with 0 scored for a “Not True” and 1 scored for a “True” for each item. |
| Score Interpretation | Ranges from 0 to 22, with higher scores reflecting greater impairment of health-related quality of life. |
| Cut-off points | --- |
| Cut-off points applied to | Not specified |
| Smallest detectable change if described | --- |
| Smallest detectable change applied to | Not specified |
| Completion time by the patient | 0 minutes |
| Scoring time by the assessor | 0 minutes |
| Training to score | Not necessary |
| Strengths | Useful in clinical practice & research |
| Limitations | Copyrighted |
| OTHER COMMENTS | |
| Other Comments |
To use the tool, permission must be applied for by emailing gr@galen-research.com with a detailed study summary; then a licence agreement will be issued. For non-commercial studies there is no licence fee but a small administration fee is applicable. |