Because there are many versions of the instruments we use in rheumatology and we may be using the ones with poorer validation. The eular OML aims to be a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.
There are many reasons besides that we love this growing field of research:
This EULAR resource centre is open to all who have an interest in PROs. You can contribute by sending us information about a given PRO, or on a long term by committing for any given rheumatic or musculoskeletal disease or topic (e.g., work productivity) for at least five years.
The OML is a public-funded, EULAR project. The initial volunteers were unpaid. Those who contribute are helped but are not paid either. Each year a volunteer fellow updates and fixes bugs in the OML with a fixed amount of money. The pharmaceutical industry plays no role in the OML.
PROs which are copyrighted are not presented in full text version since they are copyrighted. Instead, we present the link to the owner, and to the landing page.
The instruments are found by a systematic literature review coupled with expert opinion, by volunteers who are experts in their field. There is no selection of PROs since our aim is to be exhaustive for all PROs used in the field of rheumatology and published at least in English. If you think a PRO should be included and was not, please, let us now.
Errors and omissions are absolutely possible. We have to manage a myriad of questionnaires and our time is limited. If you find an error, please, let us now