EULAR

SEARCH for an outcome measure

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By Disease

No selection means any disease
Generic

ANCA-associated vasculitis (AAV)
Ankylosing spondylitis (AS)
Any RMD
Autoinflammatory diseases
Axial Spondyloarthritis
Behçet's Syndrome
Carpal Tunnel Syndrome
Degenerative Spine Disease
Elbow disorders
Fibromyalgia (FM)
Gout
Idiopathic Inflammatory Myopathies (IIM)
Inclusion Body Myositis (IBM)
Inflammatory arthritis (IA)
Joint Hypermobility Syndrome
Juvenile Idiopathic Arthritis (JIA)
Knee ligament injuries
Low Back Pain (LBP)
Lower Limb
Osteoarthritis (OA)
Osteoporosis (OP)
Plaque psoriasis
Psoriatic Arthritis (PsA)
Raynaud's disease
Rheumatoid Arthritis (RA)
Rotator Cuff Disease
Shoulder pathology
Sjögren's syndrome
Spondyloarthritis
Systemic Lupus Erythematosus (SLE)
Systemic sclerosis
Upper limb
Whole-spinal pain

By Domain

No selection means any domain
Activities of daily living
Anxiety and depression
Carpal Tunnel Syndrome Diagnosis
Cognitive Impairment
Coping & helplessness
Damage
Disease activity
Disease knowledge
Dyspnea
Fatigue
Fear
Fear of movement and (re)injury
Financial Burden
Foot health
Functional status
Gastrointestinal tract symptoms severity
Global assessment
Health related quality of life
Impact of disease
Internalised stigma
Muscle weakness
Needs assessment
Pain
Participation
Physical function
Productivity
Quality of care
Risk perception
Satisfaction
Self efficacy
Self-management
Sexual aspects
Shared decision making
Skin
Sleep
Social Function
Stiffness
Symptom severity
Work

FAQs

Why a Eular OML?

Because there are many versions of the instruments we use in rheumatology and we may be using the ones with poorer validation. The eular OML aims to be a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.

Why a library in rheumatology if there are generic libraries?

There are many reasons besides that we love this growing field of research:

  • To reduce variability through Europe. The use of instruments in research based on scientific grounds—the level of validation achieved and appropriateness for the clinical situation—will improve the scientific level of projects, and will reduce variability among countries with lower development or support on methodological matters.
  • To increase transparency. The methodology for including instruments is explicit, and any can contribute if an instrument or a version is missing.
  • To increase the awareness of researchers outside the field of rheumatology.
  • To educate the rheumatology community on the concepts of measure and validation of instruments, and on the importance of using the right tool in the appropriate way.

Who contributes to the OML?

This EULAR resource centre is open to all who have an interest in PROs. You can contribute by sending us information about a given PRO, or on a long term by committing for any given rheumatic or musculoskeletal disease or topic (e.g., work productivity) for at least five years.

Is there money involved in the OML?

The OML is a public-funded, EULAR project. The initial volunteers were unpaid. Those who contribute are helped but are not paid either. Each year a volunteer fellow updates and fixes bugs in the OML with a fixed amount of money. The pharmaceutical industry plays no role in the OML.

What about the copyrighted instruments?

PROs which are copyrighted are not presented in full text version since they are copyrighted. Instead, we present the link to the owner, and to the landing page.

Who selects the questionnaires in the OML and how are they selected?

The instruments are found by a systematic literature review coupled with expert opinion, by volunteers who are experts in their field. There is no selection of PROs since our aim is to be exhaustive for all PROs used in the field of rheumatology and published at least in English. If you think a PRO should be included and was not, please, let us now.

What if I find an error?

Errors and omissions are absolutely possible. We have to manage a myriad of questionnaires and our time is limited. If you find an error, please, let us now