SEARCH for an outcome measure

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By Disease

No selection means any disease

Generic

	ANCA-associated vasculitis (AAV)
	Ankylosing spondylitis (AS)
	Any RMD
	Autoinflammatory diseases
	Axial Spondyloarthritis
	Behçet's Syndrome
	Carpal Tunnel Syndrome
	Elbow disorders
	Fibromyalgia (FM)
	Gout
	Idiopathic Inflammatory Myopathies (IIM)
	Inclusion Body Myositis (IBM)
	Inflammatory arthritis (IA)
	Joint Hypermobility Syndrome
	Juvenile Idiopathic Arthritis (JIA)
	Knee ligament injuries

	Low Back Pain (LBP)
	Lower Limb
	Osteoarthritis (OA)
	Osteoporosis (OP)
	Plaque psoriasis
	Psoriatic Arthritis (PsA)
	Raynaud's disease
	Rheumatoid Arthritis (RA)
	Rotator Cuff Disease
	Shoulder pathology
	Sjögren's syndrome
	Systemic Lupus Erythematosus (SLE)
	Systemic sclerosis
	Upper limb
	Whole-spinal pain

By Domain

No selection means any domain

	Activities of daily living
	Anxiety and depression
	Carpal Tunnel Syndrome Diagnosis
	Coping & helplessness
	Damage
	Disease activity
	Disease knowledge
	Dyspnea
	Fatigue
	Fear
	Fear of movement and (re)injury
	Financial Burden
	Foot health
	Functional status
	Gastrointestinal tract symptoms severity
	Global assessment
	Health related quality of life
	Internalised stigma
	Muscle weakness

	Needs assessment
	Pain
	Participation
	Physical function
	Productivity
	Quality of care
	Risk perception
	Satisfaction
	Self efficacy
	Self-management
	Sexual aspects
	Shared decision making
	Skin
	Sleep
	Social Function
	Stiffness
	Symptom severity
	Work

Who are we?

The eular Outcomes Measures Library (OML) aims to be a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on patient-reported outcomes (PRO) used in rheumatology.

The database includes a detailed description of each instrument, including:

The instrument itself, and its versions in the EU languages
Description of the population/s or settings where it has been validated
Recommendations and rules for use (data collection and scoring method)
Guideline for interpretation of the results in clinical practice or in research.
References and validated translated versions in the EU languages, with download if possible or link to an access page.
Information on how validation aspects were tested.

The instruments included are obtained by systematic review, categorized by disease (e.g. rheumatoid arthritis) or by topic (e.g. work productivity).

The eular OML has been created by rheumatologists, health professionals, students, and patients who have an interest in this field of research. The project is lead by Isabel Castrejón, Laure Gossec, and Loreto Carmona, and a Scientific Committee: Robin Christensen, Francis Guillemin, Marieke Scholte-Voshaar, Alan Tennant, Till Uhlig, Lillian van Tuyl, Angela Zink, Montse Ferrer, Birgit Prodinger, and Martine Caron. There are many people contributing to feed the OML, as this is an ongoing initiative.

Persons currently responsible for the OML sections:

Fibromyalgia & Chronic Pain: José Bernardo Negrón
Generic instruments: Nelly Agrinier
Gout: Mariano Andres
Low back pain: Violaine Foltz
Osteoarthritis: Tania Gudu
Osteoporosis: Karine Briot
Pediatric rheumatology: Angelo Ravelli & Alessandro Consolaro
Psoriatic arthritis: Laure Gossec
Rheumatoid arthritis: Tania Gudu
Spondyloarthritis: Pedro Machado
Systemic Lupus Erythematosus: Isabel Castrejon
Systemic sclerosis and Raynaud's: Francesca Ingegnoli
Work productivity: Birgit Prodinger

Special thanks to Tania Gudu and José Negrón for updating the OML.

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