EULAR

outcome
measures
library

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SEARCH for an outcome measure

By name or acronym

By Language

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Arabic

Bulgarian

Chinese

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Czech

Danish

Dutch

English

Estonian

Filipino

Finnish

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Georgian

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Hebrew
Hebrew

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By Disease

No selection means any disease
Generic

ANCA-associated vasculitis (AAV)
Ankylosing spondylitis (AS)
Autoinflammatory diseases
Fibromyalgia (FM)
Gout
Inflammatory arthritis (IA)
Juvenile Idiopathic Arthritis (JIA)
Low Back Pain (LBP)
Osteoarthritis (OA)
Osteoporosis (OP)
Psoriatic Arthritis (PsA)
Raynaud's disease
Rheumatoid Arthritis (RA)
Sjögren's syndrome
Systemic Lupus Erythematosus (SLE)
Systemic sclerosis

By Domain

No selection means any domain
Anxiety and depression
Coping & helplessness
Damage
Disease activity
Fatigue
Global assessment
Health related quality of life
Muscle weakness
Needs assessment
Pain
Physical function
Satisfaction
Sexual aspects
Skin
Sleep
Social Function
Symptom severity
Work

Who are we?

The eular Outcomes Measures Library (OML) aims to be a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on patient-reported outcomes (PRO) used in rheumatology.

The database includes a detailed description of each instrument, including:

  • The instrument itself, and its versions in the EU languages
  • Description of the population/s or settings where it has been validated
  • Recommendations and rules for use  (data collection and scoring method)
  • Guideline for interpretation of the results in clinical practice or in research.
  • References and validated translated versions in the EU languages, with download if possible or link to an access page.
  • Information on how validation aspects were tested.

The instruments included are obtained by systematic review, categorized by disease (e.g. rheumatoid arthritis) or by topic (e.g. work productivity).

The eular OML has been created by rheumatologists, health professionals, students, and patients who have an interest in this field of research. The project is lead by Isabel Castrejón, Laure Gossec, and Loreto Carmona, and a Scientific Committee: Robin Christensen, Francis Guillemin, Marieke Scholte-Voshaar, Alan Tennant, Till Uhlig, Lillian van Tuyl, Angela Zink, Montse Ferrer, Birgit Prodinger, and Martine Caron. There are many people contributing to feed the OML, as this is an ongoing initiative.

Persons currently responsible for the OML sections:

  • Fibromyalgia & Chronic Pain: José Bernardo Negrón
  • Generic instruments: Nelly Agrinier
  • Gout: Mariano Andres
  • Low back pain: Violaine Foltz
  • Osteoarthritis: Tania Gudu
  • Osteoporosis: Karine Briot
  • Pediatric rheumatology: Angelo Ravelli & Alessandro Consolaro
  • Psoriatic arthritis: Laure Gossec
  • Rheumatoid arthritis: Tania Gudu
  • Spondyloarthritis: Pedro Machado
  • Systemic Lupus Erythematosus: Isabel Castrejon
  • Systemic sclerosis and Raynaud's: Francesca Ingegnoli
  • Work productivity: Birgit Prodinger

 

Special thanks to Tania Gudu and José Negrón for updating the OML. 

 

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