Who are we?

The eular Tool-Box of Patient Reported Outcomes (PRO) aims to be a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.

The database includes a detailed description of each instrument, including:

• The instrument itself, and its versions in the EU languages
• Description of the population/s or settings where it has been validated
• Recommendations and rules for use  (data collection and scoring method)
• Guideline for interpretation of the results in clinical practice or in research.
• References and validated translated versions in the EU languages, with download if possible or link to an access page.
• Information on how validation aspects were tested.

The instruments included are obtained by systematic review, categorized by disease (e.g. rheumatoid arthritis) or by topic (e.g. work productivity).

The eular Tool-Box of PRO has been created by rheumatologists, health professionals, students, and patients who have an interest in this field of research. The project is lead by Isabel Castrejón, Laure Gossec, and Loreto Carmona, and a Scientific Committee: Robin Christensen, Francis Guillemin, Marieke Scholte-Voshaar, Alan Tennant, Till Uhlig, Lillian van Tuyl, Angela Zink, Montse Ferrer, Birgit Prodinger, and Martine Caron. There are many people contributing to feed the Tool-Box as this is an ongoing initiative.

Persons currently responsible for the ToolBox sections:

• Systemic Lupus Erythematosus: Isabel Castrejon
• Spondyloarthritis: Pedro Machado
• Osteoporosis: Karine Briot
• Work productivity: Birgit Prodinger
• Pediatric rheumatology: Angelo Ravelli & Alessandro Consolaro
• Low back pain: Violaine Foltz
• Fibromyalgia & Chronic Pain: Concha Gonzalez & Rafael Curbelo
• Gout: Mariano Andres
• Generic instruments: Nelly Agrinier