EULAR

SEARCH for an outcome measure

By name or acronym

By Language

No selection means any language
Arabic

Bulgarian

Chinese

Croatian

Czech

Danish

Dutch

English

Estonian

Filipino

Finnish

French

Georgian

German

Greek

Hebrew

Hungarian

Irish

Italian

Korean

Lithuanian

Macedonian

Maltese

Montenegrin

Norwegian

Polish

Portuguese

Romanian

Russian

Serbian

Slovak

Slovenian

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Turkish

Ukrainian

By Disease

No selection means any disease
Generic

Ankylosing spondylitis (AS)
Autoinflammatory diseases
Fibromyalgia (FM)
Gout
Inflammatory arthritis (IA)
Juvenile Idiopathic Arthritis (JIA)
Low Back Pain (LBP)
Osteoarthritis (OA)
Osteoporosis (OP)
Psoriatic Arthritis (PsA)
Raynaud's disease
Rheumatoid Arthritis (RA)
Sjögren's syndrome
Systemic Lupus Erythematosus (SLE)
Systemic sclerosis

By Domain

No selection means any domain
Anxiety and depression
Coping & helplessness
Damage
Disease activity
Fatigue
Global assessment
Health related quality of life
Muscle weakness
Needs assessment
Pain
Physical function
Satisfaction
Sexual aspects
Skin
Sleep
Social Function
Symptom severity
Work

FAQs

Why a eular Tool-Box of Patient Reported Outcomes (PRO)?

The eular Tool-Box of Patient Reported Outcomes (PRO) aims to be a comprehensive database of validated instruments (indices, questionnaires, scales, or others), with an emphasis on PROs used in rheumatology.

Why a tool-box of PROs in rheumatology?

There are many reasons besides that we love this growing field of research:

  • To reduce variability through Europe. The use of instruments in research based on scientific grounds—the level of validation achieved and appropriateness for the clinical situation—will improve the scientific level of projects, and will reduce variability among countries with lower development or support on methodological matters.
  • To increase transparency. The methodology for including instruments is explicit, and any can contribute if an instrument or a version is missing.
  • To increase the awareness of researchers outside the field of rheumatology.
  • To educate the rheumatology community on the concepts of measure and validation of instruments, and on the importance of using the right tool in the appropriate way.

Who contributes to the Toolbox?

This EULAR resource centre is open to all who have an interest in PROs. You can contribute by sending us information about a given PRO, or on a long term by committing for any given rheumatic or musculoskeletal disease or topic (e.g. work productivity) for at least five years.

Is there money involved in the Toolbox?

The Toolbox is a public-funded, EULAR project. The volunteers who have entered information in the Toolbox are unpaid. The pharmaceutical industry plays no role in the Toolbox. PROs which are copyrighted are not presented in full text version since they are copyrighted, but no selection of PROs is performed.

Who selects the questionnaires in the Toolbox and how are they selected?

The PROs are found by a systematic literature review coupled with expert opinion, by volunteers who are experts in their field. There is no selection of PROs since our aim is to be exhaustive for all PROs used in the field of rheumatology and published at least in English.